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Patient resources

Resource links

ASK (Association for the Support of Children with Cancer)

Brain Tumor Foundation

Cancer Care
(800) 813-HOPE (4673)
Free help through counseling, education, information, referrals, financial assistance.

Cancer Information Service
(800) 422-6237 
Answers questions on cancer and offers printed material from the National Cancer Institute. Research information, statistics, coping, literature and resources, clinical trials.

CancerKids.Com
Fun ways for children to learn about cancer and information for parents

American Childhood Cancer Organization
(800) 366-CCCF
Strives to educate, support, serve, and advocate for families of children with cancer, survivors of childhood cancer, and the professionals who care for them.

Childhood Brain Tumor Foundation

C4 (Childhood Cancer Community Consortium)

Children's Cancer Web
A quick directory of numerous childhood cancer resources that includes information, links and lists of organizations and resources.

Children's Hospice International
(800) 2-4-CHILD 
Resources and support for families from the time of diagnosis-with hope for cure-through bereavement of family members if cure is not attained.

Children Oncology Group
This site is dedicated to childhood cancer. It offers information that takes the family from newly diagnosed, through treatment, and then after treatment. Resources are available in printable format and are written in both English and Spanish.

Complementary and Alternative Medicine
This site is sponsored by the National Institutes of Health. It is the section of the NIH that deals with complementary and alternative treatments (CAM). There is information available in Spanish.

Connor's Heroes

Kidz with Leukemia
Interactive CD-Rom to teach children about leukemia, resources and links.

Kristen Ann Carr Fund Forum
Quarterly newsletter for patients with sarcoma and their families. Relevant resources and links. Funding is dedicated to improve all aspects of a cancer patient's life, and also for research and treatment of sarcoma with an emphasis on adolescents and young adults.

Leukemia & Lymphoma Society 
(800) 955-4572 
New diagnosis support, disease information, free materials, answers to questions, support network and referrals.

Make-A-Wish 
(800) 722-WISH 
A wish-granting organization for children, including Make-A-Wish Foundation International and Make-A-Wish Foundation local chapters.

National Cancer Institute (NCI)
(800) 4-CANCER 
Comprehensive cancer database. This site provides a wealth of information for patients, families and providers. Includes summaries on cancer treatment, screening, prevention, and supportive care, and information on ongoing clinical trials; fact sheets, news, and other resources. It also offers information in Spanish.

NCI Medical Dictionary

National Child's Cancer Society

National Hospice and Palliative Care Organization  1 (800) 658-8898 
Oldest and largest membership organization representing hospice and palliative care programs and professionals in the United States. Committed to improving end-of-life care and expanding access to hospice care.

National Organization of Rare Disorders
(203) 744-0100 
A comprehensive database of diseases with related programs and services.

The Neuroblastoma Children's Cancer Society 
(800) 532-5162
Group made up of mostly volunteers who promote local research in neuroblastoma to increase awareness about the disease as well as the need for additional research and funding- until a cure can be found.

The Never-Ending Squirrel Tale
Practical tips and encouragement for parents of kids with cancer, includes a comprehensive resource list.

Parenting Plus
(239) 433-1528
Parent education and support for raising children. Specializing in serious illness and loss-related issues including divorce and separation. Phone support also available.

Pediatric Brain Tumor Foundation of the United States 
(800) 253-6330
Supports medical research and promotes public awareness. Provides hope and emotional support. Family support is accessible to patient families and to the medical and social work community and the general public.

Songs of Love
(800) 960-SONG
A non-profit organization dedicated to creating personalized songs for chronically and terminally ill children and young adults.

Teens Living with Cancer
(585) 334-0858 
Straight-up information for teens with cancer. Based on the vision of Melissa's Living Legacy Foundation --that all teens with cancer should have opportunities for meaningful, life-affirming experiences, beginning at diagnosis, continuing through treatment and remission and, if necessary, when facing death.

Transplant resource links

Blood and Marrow Transplant Clinical trial network

Bone Marrow Transplant Newsletter

Massey Cancer Center
NCI-designated cancer center works closely with and physicians are collaborating with the researchers at the cancer center.

Long-term followup resource links

Cure Search
Resources about all aspects of cancer survivorship

Fertile Hope

Group Loop
A wellness community for cancer support for teens and their loved ones

I'm too young for this
A resource portal for young adults affected by cancer

National Heart, Blood and Lung Institute 
Part of the federal government's National Institutes of Health

Planet Cancer

Sickle cell disease and other blood disorders

Central Virginia Coagulation Disorders Center

Sickle Cell Info
This is a comprehensive link for sickle cell education, information and research. The mission of this site is to provide sickle cell patient and professional education, news, and research updates.

Sickle Cell Kids
This is a kid-friendly website to teach children, teachers and parents. The site uses fun animations to educate individuals about living with sickle cell disease.

Sickle Cell Disease Association of America
This is the homepage for the Sickle Cell Disease Association of America, Inc.

Virginia Department of Health 
The Virginia Sickle Cell Awareness Programs

This website provides information regarding sickle cell disease to the public and health care professionals. It also offers information regarding screening, referral, counseling and follow-up services to Virginians at risk for sickle cell disease.

 
India Sisler
India Sisler MD Hematology and oncology Read more
Frances Austin
Frances Austin MD Hematology and oncology Read more
Thomas Brunner
Thomas Brunner FNP-BC Hematology and oncology Read more
Debra Cohen
Debra Cohen MSN, CPNP Hematology and oncology Read more
Carrie Entsminger
Carrie Entsminger CPNP Hematology and oncology Read more
Madhu Gowda
Madhu Gowda MD Hematology and oncology Read more

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